I am 3 yrs in with Iv reclast .I am one of only 250 documented people in the world with a rare pancreatic cancer. I have no choice but to get to be alive. Just had my third treatment. Die, die, die! It makes you feel like you should be dead already! Yet, after a few months, I’m no longer breaking bones when I wash dishes, or walking my dog. If you don’t have a life threatening condition, I do not recommend. However, if you should be dead already and are lucky to be alive, you may have no choice. Why anyone would choose a deadly treatment and then complain, I’ll never understand. It’s no joke,and it’s the furthest thing from a quick fix. Do your research. …it’s called Google.
My autoimmune disease is not life threatening, however, corticosteroids are the only available treatment for Polymyalgia Rheumatica. There is no alternative. I have had many relapses, NSAIDs do not work for this disease and anybody who thinks they can control PMR without steroids soon realises that the only way to beat the pain and live relatively normally is with steroids. Naturally, the dose is tapered gradually, but most people have it for 3 or 5 years or more, many like myself suffer relapes particularly if they get a viral infection, undergo surgery or have a major crisis in their lives, and some people never recover from PMR. It is a devastating disease and without steroids it is crippling. Of course there are side-effects but if one is careful about diet, exercise and plenty of rest they can be reduced. After 8 years on steroid treatment my bones are still strong. A thyroid nodule was found during an MRI to check on my spine, and I am referred to see a specialist, but an endocrinologist friend read the US report and says I have nothing to worry about. Thyroid nodules are common.
The second major complication is a steroid related rise in eye pressure, also known as being a "steroid responder". This usually requires at least 2 weeks of continuous steroid use, and is reversible if the steroid is discontinued. The rise in pressure can be very high but if often asymptomatic. It may be more common in people already being treated for glaucoma. If a person has glaucoma or has a history of steroid related eye pressure problems, they should consult with an ophthalmologist for monitoring of eye pressure if steroid treatment is being contemplated.